Saturday, December 6, 2008
Whachya doin', eatin' chicken??
Yes, Brody has started eating chicken nuggets!! Once again, a HUGE milestone in the eating area. For those of you who don't know Brody's history, he has low tone throughout his body, delayed gastric emptying and reflux....all of these have caused problems for him eating and digesting. I won't get in to graphic details, but it's been a tough road for everybody and very messy. Anyway, we have tried everything we could possible to get him eating somewhat typical foods. We hit a wall. This past summer I attended the Autism Series at Yale to see a Doctor and a OT who work with kids on the spectrum with eating and feeding issues. I talked with Kristen Powers (yes, Dr. Power's wife for those of you familiar with him) and she said I should call the center she has in Glastonbury and she would bump him up on the waiting list. Well, she did it! I'm not sure if the fact that she saw me in tears in the hall after I spoke with her helped, but if that's what it takes, I can cry for that!! I do it so often anyway!! Brody goes to the feeding clinic on Friday mornings at 8:15 am with Mark and a ton of different foods in a cooler. They work on getting him used to eating things in a very systematical way. Where we hit the wall, they know all the tricks to get around it. He is doing so well, thanks to all the work Mark does doing eating trials with him all the time. I am the one who just tries to get food in the kid and make it through the day, Mark is really working hard with Brody to get him eating different foods. Now I just remembered more people on Brody's team to get presents for. Talk about "takes a village", geez!!! For those of you who's kids will only eat chicken nuggets and hot dogs, you are soooo lucky!! I can't wait for those days!! Kinda kidding.....
Monday, December 1, 2008
I am posting this for myself so I don't forget...
I went in to pick up Brody from school as usual and he ran in to do the letters on the magnetic board like he does everyday. The letters for BRODY were there along with a couple others, he grabbed a G and ran up to me and said "G". I said the yeh, G thing and he went back to the letters. He was still holding onto the G, grabbed a D and an O, holding them awkwardly in both hands and looking at them, then looked up at me and said "DOG!" Holy crap, yes, he had the letters spelled out in his hands and said the word!!! His Para Cindy looked at me and we both started to giggle and couldn't believe him!
Another really cool thing that went on today with Brody was he has started playing this game with my where he dives onto me when I'm on the couch. He runs up, stops next to me, looks right at me and waits for me to put my arms out to catch him. Well tonight Mark and Josh went to the UCONN basketball game so it was just Brody and me. He was running into the kitchen and then running back to me to catch him and at one point I started saying "Brody, where are you?" and he came running in. Then this was the way the game went, he would wait for me to say his name and if I didn't do it, he would peek around the corner and look at me and grin and then still wait! Oh my goodness was it sooooo cute! We had a fun night.
Also, Mark called me from the game before it started and told me Josh was picked to be the ball boy for the UCONN game. Josh said he was too shy to do it. I think he was tired and it was a little intimidating to say the least in that big stadium. Poor guy. Anyway, I will post pics later...I put husky paws on Josh's hands and one on his cheek. He looked adorable!! He is going to be a mess tomorrow, ugh! Oh well.
Didn't I say these guys are amazing!!
I went in to pick up Brody from school as usual and he ran in to do the letters on the magnetic board like he does everyday. The letters for BRODY were there along with a couple others, he grabbed a G and ran up to me and said "G". I said the yeh, G thing and he went back to the letters. He was still holding onto the G, grabbed a D and an O, holding them awkwardly in both hands and looking at them, then looked up at me and said "DOG!" Holy crap, yes, he had the letters spelled out in his hands and said the word!!! His Para Cindy looked at me and we both started to giggle and couldn't believe him!
Another really cool thing that went on today with Brody was he has started playing this game with my where he dives onto me when I'm on the couch. He runs up, stops next to me, looks right at me and waits for me to put my arms out to catch him. Well tonight Mark and Josh went to the UCONN basketball game so it was just Brody and me. He was running into the kitchen and then running back to me to catch him and at one point I started saying "Brody, where are you?" and he came running in. Then this was the way the game went, he would wait for me to say his name and if I didn't do it, he would peek around the corner and look at me and grin and then still wait! Oh my goodness was it sooooo cute! We had a fun night.
Also, Mark called me from the game before it started and told me Josh was picked to be the ball boy for the UCONN game. Josh said he was too shy to do it. I think he was tired and it was a little intimidating to say the least in that big stadium. Poor guy. Anyway, I will post pics later...I put husky paws on Josh's hands and one on his cheek. He looked adorable!! He is going to be a mess tomorrow, ugh! Oh well.
Didn't I say these guys are amazing!!
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